Heather started with hospice care on Wednesday. On Monday Scott talked with the oncology staff and they said there was a slim to none chance the new chemo would work. They said wtihout chemo they thought 2-4 weeks left. This started the ball for hospice care. The next day she had a brain scan since she is having trouble hearing and she can't really see much anymore. The neurosurgeon said it looked ok that there was no reason for those sympotms. But we have had CT scans tell us things are ok before and the MRI showed things were bad. So I am not putting much stock in it. With her recent gamma knife surgery she will probably last longer cause the tumors that were causing a lot of the problems were treated. Heather was started on steroids to help with brain swelling and she has improved a little with that. Able to see a little now and more with it. She won't eat very much, just takes in fluids but that is better than nothing. She has lots of hallucinations and does not make sense a lot,but she has her moments where things make sense. While waiting for the CT scan on Tuesday she had not been with it all day. THen she tells my dad in the car that he has done all he can. I think that is what he needed to hear to let go.
On Wednesday Heather started throwing up again. Luckily it was the first day hospice was there and they were able to give her medicines that she could keep down and she got some rest. The ended up providing 24 hour care since this was a change in status. They won't be doing this until it gets closer to the end. For now they will just be coming by once a day until Heather deteriorates further. The nurse was asking my dad on wednesday night if Heather was his only child. HE told her he had 2 sons and 2 other daughters. Heather had supposedly been asleep or was just lying there silent with her eyes closed. Then she said I am so proud of Cherise. That makes life worth it right there! Nothing better than having your big sis proud of you. Last night Scott and my dad took Heather back out to her house. She has been asking to go back. The hospice has a hospital bed there for her, but Heather did not like that. She felt like she was trapped and in the hospital. Hopefully they will be ok with her being in her bed for now cause she is going to be really anxious if she is stuck in that bed.
Friday, August 21, 2009
Heather
Posted by cherise and Tristan at 8:26 AM
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